Privacy Policy

MySickleCellTeam respects the privacy of our users and has developed this Privacy Policy to demonstrate how we protect your privacy. You have our guarantee that we will NEVER betray your personal health confidences. We believe in transparency, we let our members know exactly what we do or do not do with their information.

All content shared on MySickleCellTeam is viewable by all registered members of the MySickleCellTeam community. While we encourage openness and transparency, only share content you are comfortable sharing with those who have signed up for an account on MySickleCellTeam. This social network is password-protected. The only content that search engines such as Google are able to see are anonymized versions of the QA section and anonymized versions of the provider listings.+

MySickleCellTeam is not a medical referral site and does not recommend or endorse any particular Provider or medical treatment. No information on MySickleCellTeam should be construed as medical and/or health advice. MySickleCellTeam is not a “covered entity” for purposes of determining applicability of the Health Insurance Portability and Accountability Act of 1996 and the rules promulgated there under (HIPAA) to the Site and the treatment of User Content (defined in the Terms of Service) provided by you.

Personal Information is information that can be used to identify someone (e.g. name, email address, or potentially username). We will NEVER share your Personal Information with anyone, except in cases involving authorized technical service providers, subpoenas, or illegal activity. You can view those cases here.

MySickleCellTeam may share anonymous trends about the data on our site to make sure real patients have a voice in how treatments for this condition could be shaped. (This will in no way include any personal identifiable information.) We may partner, for example, with a pharmaceutical company developing therapies for sickle cell and share anonymized or aggregated data from MySickleCellTeam that does not identify any of our users.

We encourage you to read this Privacy Policy carefully when using our website or services. By using our website, you are accepting the practices described in this Privacy Policy.

If you have any questions about our privacy practices, please feel free to contact us at support@myhealthteams.com.

Quick Links:

Information we collect about you

With whom we will share your information

How we use the information we collect

Everything else

How to contact us

Information we collect about you

We may collect personal information that can identify you such as your name and email address and other information that does not identify you.

Information you provide. When you register for the site, we collect and store any personal information you enter on our website or provide to us. This includes identifying information, such as your name, address, e-mail address, and telephone number. We also may request information about your diagnosis, your age, and other demographic information.
Information about others. We may also collect and store personal information about other people that you provide to us. If you use our website as a caregiver, entering names and locations of people you care for will be listed on our site.

We do not share your personal information with others except as indicated below or when you have expressly consented and requested that we share such information on your behalf. For instance, if you learn of a clinical trial opportunity through MySickleCellTeam and would like to be contacted by a trial site near you, we would only share your contact information with that trial site once you have consented to be contacted and authorized us to share that information. Our default position is that we will not share your personal information.

The only instances we may share personal information is with authorized technical service providers, the event of a subpoena, or an investigation into illegal activity.

Authorized technical service providers: We may share your personal information with our authorized technical services that perform certain services on our behalf. (Google Analytics, Mail Chimp, etc.) These services may include performing business and sales analysis, supporting our website functionality, and surveys offered through our website. These service providers may have access to personal information needed to perform their functions but are not permitted to share or use such information for any other purposes.

Other Situations: We also may disclose your information:

In response to a subpoena or similar investigative demand, a court order, or a request for cooperation from a law enforcement or other government agency; to establish or exercise our legal rights; to defend against legal claims; or as otherwise required by law. In such cases, we may raise or waive any legal objection or right available to us.
When we believe disclosure is appropriate in connection with efforts to investigate, prevent, or take other action regarding illegal activity, suspected fraud or other wrongdoing; to protect and defend the rights, property or safety of our company, our users, our employees, or others; to comply with applicable law or cooperate with law enforcement; or to enforce our website terms and conditions or other agreements or policies.

How we use the information we collect

You have our guarantee that we will NEVER betray your personal health confidences. We believe in transparency, we let our members know exactly what we do or do not do with their information.

+ We may use information that we collect about you to:

make you aware of upcoming clinical trials and services in your area via email or phone;

share anonymous trends about the data on our site to make sure real patients have a voice in how treatments for this condition could be shaped. (This will in no way include any personal identifiable information.) We may partner, for example, with a pharmaceutical company developing therapies for sickle cell and share anonymized or aggregated data from MySickleCellTeam that does not identify any of our users.

deliver the products and services that you have requested;

manage your account and provide you with customer support;

develop and display content tailored to your interests on our site and other sites;

enforce our terms and conditions;

manage our business and

perform functions as otherwise described to you at the time of collection.

Everything Else

Use of cookies and other technologies to collect information

What Are Cookies?

As is common practice with almost all professional websites this site uses cookies, which are tiny files that are downloaded to your computer, to improve your experience. This page describes what information they gather, how we use it and why we sometimes need to store these cookies. We will also share how you can prevent these cookies from being stored on your computer, although this may downgrade or 'break' certain elements of the site’s functionality. There are no industry standard options for disabling cookies without completely disabling the functionality and features they add to this site. It is recommended that you leave on all cookies if you are not sure whether you need them or not in case they are used to provide a service that you use.

The Cookies We Set

If you create an account with us then we will use cookies for the management of the signup proces and general administration. These cookies will usually be deleted when you log out. In some cases they may remain afterwards to remember your site preferences when logged out.

In order to provide you with a great experience we allow you to customize your preferences for how this site runs when you use it. We use cookies to remember the preferences you have set.

Like most websites, we use cookies when you are logged in to make sure that access to restricted features of the sites are only available to registered members like you. These cookies also prevents you from having to log in every single time you visit a new page on the site. These cookies are typically removed or cleared when you log out.

When you submit data through a form such as those found on contact pages or comment forms, cookies may be set to remember your user details for future correspondence.

Third Party Cookies

In some special cases we also use cookies provided by trusted third parties. The following section details which third party cookies you might encounter through this site. This site uses Google Analytics which is one of the most widespread and trusted analytics solution on the web for helping us to understand how our members use the site and what things we can do to improve your experience. These cookies may track things such as how long you spend on the site and the pages that you visit so we can continue to produce engaging content. For more information on Google Analytics cookies, see the official Google Analytics page.

You can also Opt out of Analytics Tracking.

From time to time we test new features and make subtle changes to the way the site is delivered. When we are still testing new features these cookies may be used to ensure that you receive a consistent experience whilst on the site, ensuring we understand which feature changes are preferred by users like you.

Disabling Cookies

You can prevent the setting of cookies by adjusting the settings on your browser (see your browser “Help” section for specific instructions on how to do this). Be aware that disabling cookies will affect the functionality of this and many other websites that you visit. Disabling cookies will usually result in disabling certain functionality and features of this site. Therefore it is recommended that you do not disable cookies.

You can find more information about cookies, including how to see what cookies have been set on your device and how to manage and delete them at www.aboutcookies.org.

Third-party Websites

There are a number of places on our website where you may click on a link to access other websites that do not operate under this Privacy Policy. For example, if you click on a link or a search result on our website, you may be taken to a website that we do not control. These third-party websites may independently solicit and collect information, including personal information, from you and, in some instances, provide us with information about your activities on those websites. We recommend that you consult the privacy statements of all third-party websites you visit by clicking on the “privacy” link typically located at the bottom of the webpage you are visiting.

How you can access your information

If you have an online account with us, you have the ability to review and update your personal information online by logging into your account. You can also review and update your personal information by contacting us. More information about how to contact us is provided below.

How we protect your personal information

We take appropriate security measures (including physical, electronic and procedural measures) to help safeguard your personal information from unauthorized access and disclosure. For example, only authorized employees are permitted to access personal information, and they may do so only for permitted business functions. In addition, we use firewalls to help prevent unauthorized persons from gaining access to your personal information.

We want you to feel confident using our website to transact business. However, no system can be completely secure. Therefore, although we take steps to secure your information, we do not promise, and you should not expect, that your personal information, searches, or other communications will always remain secure. Users should also take care with how they handle and disclose their personal information and should avoid sending personal information through insecure email. Please refer to the Federal Trade Commission’s website athttp://www.ftc.gov/bcp/menus/consumer/data.shtm for information about how to protect yourself against identity theft.

Posting, Comments, Questions, Recommendations

We provide areas on our websites where you can post information about yourself and others and communicate with others as well as post recommendations of establishments or upload content (e.g. pictures, videos, audio files, etc.). Such postings are governed by our TOS: http://www.MySickleCellTeam.com/about/tos. This site is a password-protected site and your personal content is only visible to those who have signed up for an account. The only content that search engines pick up in an Anonymized version of this QA section.

However, we cannot control who reads your posting or what other users may do with the information you voluntarily post, so we encourage you to exercise discretion and caution with respect to your personal information.

Children's Privacy

Our website is for those over the age of 18, and we do not knowingly collect personal information from children under the age of 13.

Visiting our websites from outside the United States

This Privacy Policy is intended to cover collection of information on our website from residents of the United States. If you are visiting our website from outside the United States, please be aware that your information may be transferred to, stored, and processed in the United States where our servers are located and our central database is operated. The data protection and other laws of the United States and other countries might not be as comprehensive as those in your country. Please be assured that we seek to take reasonable steps to ensure that your privacy is protected. By using our services, you understand that your information may be transferred to our facilities and those third parties with whom we share it as described in this privacy policy.

No rights of third parties

This Privacy Policy does not create rights enforceable by third parties or require disclosure of any personal information relating to users of the website.

Changes to this privacy policy

We will occasionally update this Privacy Policy to reflect changes in our practices and services. When we post changes to this Privacy Policy, we will revise the “last updated” date at the bottom of this Privacy Policy. If we make any material changes in the way we collect, use, and/or share your personal information, we will notify you by sending an e-mail to the e-mail address you most recently provided us in your account, profile or registration (unless we do not have such an email address), and/or by prominently posting notice of the changes on our website. We recommend that you check our website from time to time to inform yourself of any changes in this Privacy Policy or any of our other policies.

How to contact us

If you have any questions about this Privacy Policy or our information-handling practices, please contact us by e-mail or postal mail as follows:

Privacy Officer, MyHealthTeam
One Post Street, Suite 2250, San Francisco, CA 94104

This Privacy Policy was last updated on February 11, 2015.

MySickleCellTeam is not a medical referral site and does not recommend or endorse any particular Provider or medical treatment.
No information on MySickleCellTeam should be construed as medical and/or health advice.